Yes - This Is The Look I Was Going For (Thanks For Asking)

A couple of weeks ago I got my hair cut shorter than usual. Inspired by the new style, I asked my hairdresser to show me how I could curl my stick-straight hair in a way that would actually hold for times when I wanted a different look. She gave me some tips and recommended a curling iron and products that would help me achieve the look I wanted.

It was a Friday and therefore a day off work so I took the opportunity to purchase the curling iron and products my stylist recommended and then spent some extra time trying out my new style. Pleased with the results, I sprayed it with one of the new products as a test to see if my curls would hold and went about the business of the rest of my day without giving further thought to my sassy, new hairstyle.

That night was the Talent Show at school and although no Crandlers were participating, we were all looking forward to attending. As Maggie and I stood chatting in the kitchen, waiting to leave, Dylan came in at least four times asking our opinions on various t-shirts and hats. Amused by Dylan's concern for his “look,” I had forgotten all about my own new hairstyle, until he looked at me, cocked his head to one side and scrunched his face ever-so-slightly. When I raised an eyebrow at him in an obvious, but silent, “What?” he said, “Lori, are you sure you’re completely satisfied with the way your hair looks?”

Maggie’s mouth fell open and she smacked him in the back of the head, but I remained calm thinking, “I can't wait to see him talk his way out of this one,” and patiently anticipated his back-pedal. Watching his face, I could clearly see the wheels in his head spinning wildly. I let him squirm for a minute or two, enjoying his discomfort, before finally letting him off the hook with, “Messy-curly is what I was going for, Dylan.”

Relief swept over him in a giant wave, his shoulders visibly relaxing and his face clearly registering, “Oh thank god,” as he let out an audible, “Whew,” with a huge rush of air he had been holding in his lungs while waiting for my reaction.

While watching him squirm was fun, I think next time (and I’m reasonably certain there will be a next time) I’ll go with a bordering-on-hysterical, “What do you mean am I completely satisfied with my hair? You think my hair is ugly, don’t you? And I suppose my butt looks big in these jeans too?” That ought to scare him away from talking to girls or even thinking about dating for another few years at least.

The benefits of having me as a roommate, while not always obvious, are nonetheless numerous. You’re welcome, Maggie.

What Lucy Wants to Be

After my recent, interesting (and predictably-odd) conversation with Ben about what he would like to be when he grows up, I took a deep breath and asked Lucy what she'd like to be.

“Time-traveler.” No hesitation. Lucy would like to be a time-traveler when she grows up.

“Will that be your job, or just something you’d like to do? Do you envision being paid to be a time-traveler?” I asked her.

“People will pay me to go into the future and come back and tell them what’s going to happen to them,” she said.

 “That’s great. But what if something bad happens to them in the future?"

She shrugged, completely unconcerned. “I’ll tell them.”

“Do you think they’ll still pay you if it’s bad news?”

She looked at me like I was a complete idiot and said, “They’ll pay me first, mom.” (The “you dumbass” was only implied.)

Next she said that if the whole time-traveler thing didn't work out, she’d like to be a gymnast who’s so good that even people who don’t know about gymnastics will know who she is.

Hmm. I guess I should sign her up for a gymnastics class.

Then we sat together in silence for a few minutes, holding hands and pondering her bright future… until she emerged from her introspection with a start, jumped up and quipped happily as she ran down the hall in search of Hope, “Or a peanut butter and jelly sandwich!”

There was a lengthy pause while my brain tried to catch up with the leap hers had just made. Finally I recovered and called after her. “I’m sorry? Did you say you’d like to be a peanut butter and jelly sandwich?”

“Yeah,” she shouted over her shoulder. "You know, like outside a store. Dancing around and stuff.”

Oh good. She has a back-up plan.

Whew.

I'm Not Sad...

...I'm depressed. Those are not the same. 


A year ago I wrote here about suffering from depression in a post called "Off My Meds". In the year that’s gone by since I wrote that piece, a lot of truly wonderful things have happened in my life and I have felt many moments of true joy. Friends are pleased to see me happy and assume that my depression is held at bay by that happiness. And I let them believe they’re right. The truth is not what they want to hear. “Now that these good things have happened, isn't it wonderful to not be depressed anymore? Isn't it a huge weight off your shoulders?”

And I say, “Yes, of course it is.” Because if I was still depressed, that would be wrong…right?

What people who don’t suffer often don’t understand is that depression simply doesn’t work that way. What people who don’t suffer often don’t understand is that I’m depressed, not sad.  Do I feel better when wonderful things happen in my life? Of course I do. But do I also still feel like I’m clawing my way out of a hole much of the time? Am I sometimes paralyzed with worry that I’ll ruin everything I touch (most terrifyingly, my children)? Am I racked with guilt for no discernible reason?  Honestly believe that most everything is my fault? Fight overwhelming urges to hide from the world? Sadly, yes. Because depression is not the same as sadness and it doesn't go away as easily. Maybe it never truly goes away at all. 

And I’m ashamed to admit that I have, at times, apologized for those feelings when I know that truly, I should not. Depression is not a weakness. It is not something for which anyone should apologize. My "apology" for suffering from depression can be found in the way I live my life and in the way I raise my wonderful children. My apology can be found in the strength of my character. My apology can be found in my desire to make a difference in the world. The way in which I "apologize" for my depression is, quite simply, to carry on with the business of living.

Do I still feel as if I’m hanging by a thread much of the time? Yes, I do and I will not apologize. But maybe I’ll learn to cling to my thread with a little more grace and even a bit of style. And just maybe I can even help you do the same.

A year ago I wrote here about suffering from depression. And in that piece, I wrote about feeling like I’m hanging by a thread. Many people reached out to me after I published that post and I identified with so much of what they wrote to me—each e-mail touching me more deeply than words can express. But one particular friend wrote something to me that truly struck a chord. She wrote, “I really, really like what you've done with the thread you're holding onto – it’s multi-strand and colorful, with a hint of glitter.” I have given that statement a lot of thought over the past year.

It’s easy to see that the strands of the thread I hold onto are my children, friends and family, as well as the many facets of my life, but this sweet friend’s words made me realize it just might be that hint of glitter in my thread that gets me through most days. And when I thought about it, really thought about it, I realized that hint of glitter is nothing more than "me" showing through. It's the light, the “oomph, ” the indefinable something special, that lives in all of us, if we just remember to look for it.

This same friend mentioned to me recently that she had been clinging to her own, non-glittery thread of late. So I sent her some sparkly thread in the mail - a reminder to look for the light inside herself. The light I can see so clearly.


And then I thought of another friend who might need a hint of glitter in her thread, so I sent her some too. Then I thought of another friend. And another. So I went back to the store and I bought more thread. If I send some to you and you don’t need it today, hang onto it for a day when you do (it's good to have on hand). Or pass it along to a friend who might need it right now.


Maybe if we all took just a little extra time to not only look for the light inside ourselves, but also to recognize and honor the light in each other, the world itself might seem more welcoming and supportive, more understanding…more kind. And maybe just a touch more glittery.

Who knows what might happen if we all stopped apologizing and wove a hint of glitter into the thread we’re hanging by.

When I Grow Up

Ben and I sat together on my bed last night and talked about what he wants to be when he grows up. A completely normal and wonderful conversation to have with a ten-year-old boy, but with a healthy dose of ‘out-of-left-field’—it was a Heagler family conversation, after all.

He thinks he might want to be a professional football player and he spent a lot of time telling me which team he hoped would sign him, based not only on what he predicts their chances of winning a championship during his time on the team to be, but also on whether or not he deems them to be a “talented group of guys.” Never mind that Ben has never played football (or any sport for that matter). Or that any time I've asked if he’d like to try playing a sport he’s declined. Add to all of that the fact that he’d very likely find football particularly difficult given the amount of human contact involved, and what you have is a highly unlikely scenario for what Ben might be when he grows up. No matter, though, because today Ben thinks he has a real shot at being a player in the National Football League someday. Maybe for the New England Patriots (a talented group of guys).

Next he said he might like to own a store instead. “What kind of store?” I asked. “I’d like to own a store that sells stuff that people don’t think is cool, but really is, like suspenders and berets and stuff.” “Stuff that’s so uncool it’s cool?” “Exactly.”


I paused to mull that over for a moment, appreciating the symmetry of this particular idea coming from my Ben. It was then, while I was basking in pride for my son and appreciation for just how incredibly cool he really is, that he admitted conspiratorially that neither professional football player nor the owner of a So Uncool It’s Cool store was his first choice for what he wants to be when he grows up. Apparently, what Ben would most like to be when he’s all grown up is a DJ. In a candy store.

I probably should have seen that coming. After all, he did say in a recent conversation about heroes that his were Neil Diamond and Mr. Peanut.

Come to think of it, during that same conversation, Lucy claimed that Flo from Progressive was her hero.

Maybe now's a good time to check in with Lucy about what she wants to be when she grows up.

I'll get back to you.

Control Freak

 “If you hold on to the handle, she said, it’s easier to maintain the illusion of control. But it’s more fun if you just let the wind carry you.” –Brian Andreas

Maggie’s parents and her 90-year-old grandmother have arrived from Ohio. They’re moving here to be close to Maggie and a bigger part of their grandkids’ lives. They’ve rented a house nearby, but stayed with us for a few days while they readied the house and waited for the truck with their belongings to arrive. So the Crandler house has been even more chaotic than usual (if you can imagine).

One morning, Maggie’s dad found me in the kitchen getting my coffee, put his arm around my shoulders and poked a little fun at me with a keen observation: “Every morning I walk past your room and see your perfectly-made bed and I would swear, were it not for the fact that there’s not enough floor space in your room to do so, that you had slept on the floor next to it, rather than in it. And every morning I think, 'there’s someone trying to carve out a little slice of order amid chaos'.”

Maggie’s dad is a very astute man.

I do, in fact, protect rather fiercely the 8 x 11-foot space in this house that is mine alone, for I am one who appreciates order and predictability and who enjoys at least some measure of control when it is possible. Perhaps it’s no surprise that I have a son who very nearly requires these things.

Recently, a long break from school, the holidays and the arrival of Maggie’s family has made for an extended interruption of our routine, and Ben, understandably, has been a little off his game. I encourage him to try different strategies to cope with his anxiety with some success, but it’s an arduous (and probably life-long) process for Ben and kids like him. So, in addition to encouraging him to work hard to accept what he cannot control, I work hard to control what I can for him. You might call it over-parenting or hovering, or even whisper “helicopter-mom” or "control freak" behind my back. Unless you’ve walked in my shoes (or perhaps lived in my household) it would be difficult to understand.

I serve donuts on Sunday morning… no matter what. And say the exact same thing at bedtime every night… no matter what. And always, always serve corn on the white plates (never the green)… no matter what.  I control what little I can for Ben because there’s so very much that I cannot. I consider it to be just about the least I can do for him.

I will most certainly continue to hold on tight to the handle so that I might maintain the illusion of control when it helps Ben…or me. And I will do so unapologetically. But I will also try to remember to let go whenever I can and experience the fun of letting the wind carry me.

The Space Between

An old friend called this week and told me a story about introducing a woman he’s been dating to a visiting family member. Politeness dictated she come inside and meet my friend’s aunt, but she wasn’t ready to meet the family and it resulted in tension between them. I told my friend that while I understood his girlfriend's not being ready, I hoped she understood that there was a lot of space between coming inside and politely saying hello to a boyfriend’s visiting aunt and joining his entire family for their Christmas morning celebration.

And that got me thinking about space.

My boyfriend and I are in kind of a weird place at the moment. Ours is a long-distance relationship, but we’ve decided we want to be together permanently. He plans to move to Seattle and we’re both so excited about the prospect we can hardly stand it. But between the prospect and the reality is a lot of space. Finding a job, a place to live and the money to fund the move all have to happen before he can get here. We’re trying to not let the stress of all that must happen before we can be together diminish our happiness, but it’s hard. Some days the space between the prospect and the reality seems insurmountable.

My sweet Ben is doing so well in school that he might “test out” of special education services at the end of the school year. I’m so proud of his incredible progress and yet so scared of how he will handle it when he must go it alone at school. The space between appearing typical enough to test out of services and actually leading a typical existence scares me. What if I can’t provide him all the help he needs?

I’ve written recently about some pretty big projects to which I’ve committed myself, and at the risk of sounding like a broken record, I worry that I’ll disappoint someone, most likely myself.  The space between my intentions—to chair the autism walk successfully, complete the school yearbook on time, finish the first 50 pages of a book, submit articles to publications on a regular basis (and of course, mail birthday cards in a timely fashion)—and that which I will actually accomplish is causing me to feel anxious.

I’ve been feeling scared, frustrated, overwhelmed and apprehensive about the space between, but my conversation with an old friend—the one that got me thinking—made me realize that I’ve been looking at it all wrong. The space between isn’t something to be feared, endured or overcome. In fact, the space between may just be what life is all about. In “Beautiful Boy,” John Lennon wrote, “Life is what happens to you when you’re busy making other plans.” Perhaps the key is simply learning to find some joy, no matter how small, in  that space between. That space where life happens.

The space between exchanging niceties and joining the family, between prospect and reality, your child’s reliance on you and his burgeoning independence. The space between an idea for a book and a completed work, between economic struggle and financial freedom, intentions and accomplishments. Quite simply, the space between where you are and where you’re going—between who you are and who you want to be. Life happens in the space between and I believe it’s possible that whether or not we can find joy in that space may very well determine if we can find joy in life.

As I did this week, I often have to remind myself to look for the joy in that space between. Sometimes I have to look very hard. But each time I manage to find some joy there, I hope I’m teaching my children an enduring lesson: always keep an eye on where you’re going, but remember to find joy in the space between while you’re getting there. Revel in the messy, undone-ness of it all. Embrace the possibilities that can only exist in that space. Feel the fear that lives there and move forward anyway. And when you get to where you’re going, celebrate your success, enjoy the rewards of having gotten there and even pat yourself on the back.

And then, Ben and Lucy…make some more space.

A Beautiful World, a Life That's Too Short & Plenty of Big-Girl Panties

 “She said she usually cried at least once each day not because she was sad, but because the world was so beautiful and life was so short.” –Brian Andreas.

Not only is life short, but it also seems to fly by at breakneck speed. And like most everyone, I often find myself short on time. I wrote a post here recently in which I lamented my many shortcomings of 2011 and promised to model my future behavior after the illustrious and prolific Harry Harold, the Heagler Elf-on-the-Shelf. I even went so far as to strongly imply that I would send you a birthday card in 2012. It’s possible I spoke too soon, however, so please don’t hold your breath. I’d hate to be responsible for your passing out and hitting your head.

After the 2011 autism walk, the co-chairs of the event and the Pacific Northwest Manager of Autism Speaks invited me to dinner to celebrate our success and talk about the 2012 walk. I knew that they would ask me to be more involved in the planning committee and on the day I was scheduled to meet with them, my roommate, the consummate volunteer, sat me down over breakfast and gave me a talking-to about knowing when to say “no."

I went to dinner fully expecting them to encourage me to become a full-fledged member of the planning committee and reasonably prepared to say “no.” So you can imagine my surprise when they asked me to co-chair the 2012 Walk. Co-chair an event of this caliber? But that's a big-girl job! And even more surprising than being asked was hearing the word “yes” come out of my mouth. I’m still not entirely sure what came over me. I am, admittedly, a little concerned that I've agreed to something that’s beyond my skill set. But I’ve decided to put on my big-girl panties and give it my best shot (fortunately I have about 47 pairs from which to choose—big-girl panties can be hot-pink lace or leopard-print...right?). So 15 minutes into dinner and I'm co-chairing Walk Now for Autism Speaks Puget Sound 2012 (and did I mention 2013 as well?). Why not, right? Now that the holiday season is over I have an open slot in my schedule from midnight to 2:00 am.

In 2012 it’s likely I’ll continue to cry at least once each day because the world is so beautiful and life is so short. But the cry will have to be brief because I have a lot of work to do. And nothing could make me happier.